Yesterday I was volunteering to answer the phones at church when the office manager started asking me questions about what it’s like to have Fibromyalgia. Inevitably the conversation came around to the point where we talked about the fact that it’s difficult to have something that so few people know about and even fewer understand.
When I was diagnosed I was so angry. I was very depressed for a very long time. I simply didn’t want to face the fact that I was going to live life with limitations. To be quite honest, while I’m not so depressed anymore, I’m still not sure how to deal with the living life with limitations part yet. It’s hard to not look sick and still have to say to people, “I’m sorry, I can’t do x, y, z, because I need to save my energy.”
Christine, the author of “But You Don’t Look Sick” hit the nail on the head. People who have diseases and disorders where we don’t look sick every day still have a limited number of “spoons” that we can use up each day and our number of spoons is much lower than that of a healthy person.
Please, if you’re struggling to find a way to deal with your own Fibromyalgia limitations or with the limitations of someone close to you, take some time to read But You Don’t Look Sick.
In knitting news…I finished my Trekking XXL socks and they fit like the proverbial glove. Just need to kitchener the toe of the second sock and decide if I’m going to tear out the toe of the first sock and redo the kitchener on that one.